Days to Clear GF Labeling
This site is a collaboration between the founders of 1in133.org, Jules Shepard and John Forberger, and the American Celiac Disease Alliance.
11:00 a.m - 4:30 - Cake Building (all are welcome)
We are developing opportunities to brief staffers on Capitol Hill and meet with individual Congressional Representatives - watch for details.
5 p.m. - 8:30 - VIP Reception (donors & invited guests)
With distinguished speakers, including Dr. Alessio Fasano
Finger Foods by chef extraordinaire Aaron Flores and local restaurants serving gluten-free menu items
(Everyone is welcome, donations kindly requested. Please RSVP to Info@1in133.org First 300 attendees receive a "swag bag" full of gluten-free magazines and goodies provided by our sponsors)
All Day - Individuals are encouraged to make appointments with their Representative and Senators to discuss the need for gluten-free labeling standards. Not sure how to do this? See "Coming to the Summit".
One in 133 Americans has Celiac disease (also known as celiac sprue, coeliac disease, non-tropical sprue or gluten sensitive enteropathy), a chronic and permanent sensitivity to the food protein gluten, found in the grains wheat, barley and rye. Developing the disease requires three things: a genetic predisposition; exposure to gluten through digestion; and a trigger to start this atypical immune system response. It can occur in people of all ages once exposed to gluten, and is the most common genetic disorder in North America and Europe, although it is found in populations all over the world.
….[C]eliac disease (CD) is classified as an auto-immune disease, which simply means that the body attacks itself in an inappropriate immune system reaction. In CD, the reaction is caused specifically by exposure to gliadin, a protein of the food molecule gluten found in wheat, barley and rye …
Gluten intolerance is another condition that requires adherence to a gluten-free diet but does not rise to the level of an autoimmune disease. Food intolerances occur when the body is incapable of metabolizing certain foods, typically because it lacks certain enzymes necessary to break down particular food components. Those with gluten intolerance often have the same overt symptoms as those with CD, but they test negative for celiac disease by bloodwork and endoscopy. They learn through trial and error that gluten is the culprit for their uncomfortable symptoms, and once they adopt a gluten-free diet, live an otherwise normal healthy life.
How Does Prevalence of
Celiac Disease Compare?
Illness Number of American Sufferers: Gluten Sensitivity 18 million Americans
(Alessio Fasano, 2011)
Celiac Disease at least 3 million Americans Autism 556,000 Americans Crohn's Disease 500,000 Americans Cystic Fibrosis 30,000 Americans Down Syndrome 350,000 Americans
(42,000 of those diagnosed also have celiac disease)
Epilepsy 2.7 million Americans Hemophilia 17,000 Americans Infertility (unexplained) 610,000 American women
(36,600 of those also have celiac disease)
Lupus 1.5 million Americans Multiple Sclerosis 400,000 Americans Parkinson's Disease 1 million Americans Rheumatoid Arthritis 2.1 million Americans Type 1 Diabetes 3 million Americans
(180,000 of those diagnosed also have celiac disease)
Ulcerative Colitis 500,000 Americans